Our Update

Benjamin has been officially diagnosed with Chronic Hydrocephalus (basically the fluid on his brain isn’t being absorbed like it should be and his 3rd and 4th Ventricles are rather large) This is something that has been going on undiagnosed for a number of years they figure – at least 3 years – earlier tests were performed at birth and there was no notice of large ventricles at that time. The reason this was found is because of the CT Scan that was performed on May 15th after Benjamin fainted at a friend's 2nd birthday party.

The Current Plan of attack is:

1 – Sedated Mri
This was performed on June 8th which showed Chronic Hydrocephalus

2 – Othmapology Appointment (checking pressure of his eyes)
This was performed on June 8th which showed normal pressure in his eyes

3 – EKG
Contacting Dr.Dorey (NHOH) asap for this to be done

4 – Possible Holter Monitor
Contacting Dr.Dorey in regards to this possibility

5 – Meeting with Dr.Browd in Seattle in 2 weeks time
3rd week of june – after EKG has been performed

6 – Television Test
Leads put onto Benjamin’s head and television will be watched for 40 minutes to watch brain activity (will attempt to schedule for 2 weeks, same day as app’t with Dr. Browd)

7 – Lumbar Puncture
Within the week of the appointment/meeting with Dr.Browd
This will require another sedation of Benjamin

8 – Possible Shunt Surgery
This will be done if the pressure from the lumbar puncture is high – this will be done in approximately 4-5 weeks from today – resulting in 2-3 days in Seattle Children’s Hospital as a patient recovering from Brain Surgery.